Resources and Links
“Loop Us & Love Us” Project
According to the CDC, lupus is an autoimmune disease that triggers inflammation in different tissues of the body. Autoimmune diseases happen when the body’s immune system attacks its own tissues. The most common type of lupus is systemic lupus erythematosus (SLE), which affects different parts of the body including internal organs. In addition to SLE, the National Institutes of Health describes other types of lupus as: Discoid lupus erythematosus—causes a skin rash that doesn’t go away; Subacute cutaneous lupus erythematosus—causes skin sores on parts of the body exposed to sun; Drug-induced lupus—can be caused by medications; and, Neonatal lupus—a rare type of lupus that affects newborns.
Free Downloadable Resources
Please feel free to download and use the following from The Lupus Initiative Resources:
The Role of Perspectives in Lupus Care: a four part video series demonstrating how patient and physician shortcuts in thinking impact the diagnosis and treatment of lupus.
Sick and Tired of Being Sick and Tired: a data-based vignette that provides a real world example of how patient care can be impacted by cultural differences
CME on Health Disparities in SLE: this lecture provides an overview of health disparities in lupus. Certain ethnic, gender and racial patient populations are prone to a higher incidence and prevalence of lupus and sometimes poorer quality health care than other Americans. Dr. Irene Blanco defines health disparities in systemic lupus erythematosus, discusses racial and ethnic health disparities as they pertain to SLE and identifies ways to recognize, address and reduce these disparities.
Patient and Supporter Resource: additional resources designed specifically for people with lupus including a fact sheet and a symptom tracker. Most of these resources are available in Arabic, Chinese, French, Korean, Spanish & Vietnamese.
CME: TLI also offers a variety of CMEs for providers including Dermatology & Lupus and Epidemiology, Disparities and Social Determinants of Lupus.
Big Bend AHEC’s “Loop Us & Love Us” project is supported by funding from the national Office of Minority Health, US Department of Health and Human Services through the Directors of Health Promotion & Education (DHPE)’s Health Equity Lupus Education and Awareness for Patients, Providers and Professionals (LEAP) Program (DHPE LEAP Flyer).